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The following UK surgeons are recommended by our members based on multiple positive reviews. UK surgeons known to operate on normocalcaemic patients are limited, indicated below with an asterisk.

BAETS published audits in 2024 for years 2020 - 2023: https://baets.org.uk/reports/ The absence of audits during these years made it difficult for patients to choose a surgeon. We depended entirely on patient feedback. The audits were enlightening, but didn't impact our recommended surgeons. 

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Paul Dent * Croydon. Exclusively NHS Home | Croydon Health Services NHS Trusthttps://www.stgeorges.nhs.uk/

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Shad Khan * Oxford Oxford University Hospitals (ouh.nhs.uk)  

https://thefoscotehospital.co.uk/consultants/mr-shad-khan/ 
Note: Oxford Hospitals so not accept NHS referrals from outside their catchment area.

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Matthew Ward * Portsmouth  https://www.porthosp.nhs.uk/departments-and-services/ear-nose-and-throat-ent

Home | Solent Parathyroid | Portsmouth

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Tom Kurzawinski UCLH University College Hospital : University College London Hospitals NHS Foundation Trust (uclh.nhs.uk)

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​​Susannah Shore * Liverpool https://www.liverpoolft.nhs.uk
Royal Liverpool and Broadgreen University Hospitals NHS Trust (rlbuht.nhs.

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Tarek Abdel-Aziz * UCLH University College Hospital : University College London Hospitals NHS Foundation Trust (uclh.nhs.uk)Mr Tarek Abdel-Aziz | Cleveland Clinic London

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Beverley Lim Sheffield https://www.sth.nhs.uk/

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​​​Frank Agada * York https://www.yorkhospitals.nhs.uk

Mr Frank Agada : Ear, nose and throat surgery (bupa.co.uk)

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​Richard Townsley - Ayrshire 
https://www.nhsaaa.net/services/hospitals/university-hospital-crosshouse/

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​​Edward Chisholm Taunton and Somerset

https://www.somersetft.nhs.uk/ent/https://somersetent.co.uk/about-mr-chisholm/

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​Orla Young Galway https://www.saolta.ie/hospital/university-hospital-galway

 

​Jennifer Downs * Bournemouth General Surgery Staff - Royal Bournemouth Hospital - NHS (www.nhs.uk)

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​​​Alison Waghorn * Liverpool https://www.liverpoolft.nhs.ukRoyal Liverpool and Broadgreen University Hospitals NHS Trust (rlbuht.nhs.

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Omar Hilmi * Glasgow Glasgow Royal/Ross Hall Hospitalhttps://www.circlehealthgroup.co.uk/consultants/omar-hilmi

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Hani Nasef * Portsmouth https://www.porthosp.nhs.uk/departments-and-services/ear-nose-and-throat-ent

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​​Enyo Ofo SW London https://www.stgeorges.nhs.uk/

https://www.newvictoria.co.uk/consultants/mr-enyi-ofo/


Mamun Rashid Bedfordshire Bedfordshire Hospitals NHS Foundation Trust​

We can recommend surgeons based on experiences from our members but it is still important for you to chart your levels and do your own research. If you have elevated calcium, elevated PTH, and positive scans, you are a straightforward diagnostic case for any experienced parathyroid surgeon, but scans cant always be relied upon. We cant stress that enough and base it upon surgical results of hyperparathyroid patients over the last ten years.

If you have persistent elevated PTH, or inappropriate PTH with normal calcium, and symptoms of PHPT, you need a surgeon who understands normocalcemic primary hyperparathyroidism and is prepared to operate.

We find it bewildering how so many UK surgeons still do not accept NCPHPT exists, who refuse surgery based on calcium not being high enough.  Look at our case stories for examples of people whose lives were miserably blighted by poor health for decades with NCPHPT (including my own) or look up population based studies dating back to 1969. We have some amazing surgeons providing surgical evidence and changing lives by operating, Not everybody with NCPHPT will progress to classic PHPT, so it is vital to find a surgeon prepared to operate before this disease causes long-term and sometimes irreversible damage to your body.  PLEASE DO NOT GIVE UP. 

Do your own research, and ask your doctors to do the same. You are not obliged to stay in your catchment area if your surgeon refuses surgery. 

 

Oxford Hospitals management are not taking out of area patients but will accept some surrounding areas such as Berkshire.

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Share your feedback with us to help other patients.

 

If you've had a great experience with a parathyroid surgeon who isn't on our recommended list, please contact us to share your feedback. Equally, please let us know about negative experiences also. 

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If you're a surgeon and would like to be listed above, please ask your patients to join our 'FB group' to share their feedback with us.

A reminder to ask your surgeons to test magnesium levels after surgery. Most people we see readmitted after surgery, have hypomagnesemia, most likely for patients going into surgery with low or low in the range magnesium, especially if they've been taking Cinacalcet.

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https://www.endocrine-abstracts.org/ea/0026/ea0026oc3.2

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That moment when you give advice, they don't listen, and you sit back and watch everything you predicted happen. We would much rather they listened, or did their own up date research.

The following surgeons have received positive feedback from our non-UK members:
 

Dr Babak Larian *  http://www.hyperparathyroidmd.com/

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Julie Miller  Melbourne, Australia

http://www.parathyroid.com.au/julie-miller-endocrine-surgeon.html

 

Ming Yew * Perth Australia http://drmingyew.com.au/parathyroid.php

 

Jesse Pasternak  Toronto, Canada:  Jesse Pasternak | Department of Surgery (utoronto.ca)

Dean Lisewski Perth Australia https://www.ptcc.com.au/

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Leigh Dunbridge Sydney Australia
https://www.parathyroidandthyroidsurgeon.com.au/fhh-familial-hypocalciuric-hypercalcemia

 

Scott Albert Syracuse US NY Upstate Hospital. Oncologist specialising in Parathyroidectomy.
 

Dr Janusic Croatia http://www.drjanusic.com/Pocetna.html
 

Marlon Guerrero Tucson University Medical Center. Arizona, US.

http://uacc.arizona.edu/profile/marlon-guerrero

Richard Welsh PR Consultant 'FHVG':

"Properly vetting a doctor before surgery is crucial, especially since the result of that surgery affects the quality of life you experience afterward. There are differences in the talents of surgeons, so being equipped to choosing the one you feel most comfortable and confident in is extremely useful."

https://www.fhvlegal.com/vetting-doctor-before-surgery/

If your surgeon wants to delay surgery to wait for your calcium levels to increase, or until you have osteoporosis and/or kidney stones, or if they say other patients are a higher priority,  please exercise your right to a second opinion. Find out the number of parathyroid operations per year your proposed surgeon performs. Please feel free to contact us to ask our members about their experiences with the same surgeon.

 

Surgeons should make every effort to cure you first time. We know too well the consequences of a failed surgery and how hard it can be trying to get re-operative surgery for persistent hyperparathyroidism.

If your surgeon refuses to offer a 4-gland exploration (recommended in NICE guidelines:  https://www.nice.org.uk/guidance/NG132), it is important to ask why.  It is also important to ask if they test PTH intraoperatively and how soon after surgery they will test calcium and PTH, and it is important to ask about follow up should your surgery not be successful. 

We strongly believe all surgeons should offer post op advice in the weeks following surgery rather than simply discharge you back into the care of your GP without instructions for post op care including required blood tests and supplements. We have post op instructions and advice in our files. Please contact us if appropriate post op follow up has not been provided.

Many people experience symptoms of a post-op 3rd day calcium reduction, and will need to supplement with vitamin D, magnesium and increase dietary calcium and/or take a supplement, even if their blood calcium levels are adequate. 

Please get in touch with us if you are concerned about post op bone remineralisation and how to look after yourself in the days, weeks and months following surgery.  We cant stress enough,  how important this is. Not everybody will recover immediately from surgery, some take longer. A parathyroidectomy will halt the progress of hyperparathyroidism. if some symptoms persist, we can likely  help you to understand why and offer advice and support via our Facebook support group. Go to our Endocrinologists page to see two articles regarding post op hungry bone syndrome,

If any clinician believes that sick patients enjoy having to research their condition, please understand that many of us feel we have no option if we are to survive it. Faced with a clinician we are relying on to help us, who isn't up to date, is very daunting. We all understand what 'fighting for my life' implies. Fight or flight is 'an instinctive physiological response to a threatening situation which readies one to resist forcibly or run away.'

An example is when a patient is told that hyperparathyroidism doesn't cause cardiac disease. Oh dear, that is so untrue.  Please read the following review, and my latest blog, or do your own research, and catch up with us;  'This review evaluates current studies and relationships between parathyroid disease and the cardiovascular system and highlights the important implications for mortality and morbidity stemming from these disorders'. 

The Parathyroid Gland and Heart Disease - PMC (nih.gov) 
 

If your surgeon refuses to test Magnesium, ask them to read this study from February 2024 and ask why they don't know this or if it will change their opinion. Magnesium is a very cheap blood test for the NHS

https://pubmed.ncbi.nlm.nih.gov/37922091/  'Hypomagnesemia may be associated with symptomatic disease in patients with primary hyperparathyroidism'

Primary Hyperparathyroidism can be a very lonely and debilitating disease, especially when friends, family and doctors don't see or understand how much we are suffering, or how worried we become when we find we have done much more research than the doctors in charge of our health. 

Reaching out to others who do understand, who find themselves on the same path, or have recovered after surgery, can help you throughout your journey to surgery and beyond. Please consider joining our online support group. We likely have people in your area of the UK who can offer you local support and advice. 

https://www.facebook.com/groups/HyperparathyroidUKAction4Change/

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A friend recently called us the 'Facebook Hyperpara Clinic'.. open 24 hours, friendly, welcoming and knowledgeable.. 

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Normohormonal PHPT: Elevated/high normal calcium & non suppressed PTH.
 

 

  • An extract from the conclusion: Patients with PHPT and either elevated or normal PTH levels present with similar symptoms and calcium levels. The majority of patients with normal PTH have SGD, although adenomas are smaller. This may explain why patients with normal PTH values have less sensitive imaging and more frequently require four-gland exploration. https://link.springer.com/article/10.1245/s10434-011-1744-x. 

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https://pubmed.ncbi.nlm.nih.gov/37772923/   Intraoperative Parathyroid Hormone Monitoring In Normohormonal Primary Hyperparathyroidism: How Low Do You Go? 

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Books published by Sallie Powell
A Normal Christmas - Lighthearted HyperPARAthyroid adaptation of 'A Christmas Carol'

Written in 2020 after seeing many operations cancelled due to the pandemic. The aim was to try to get across a very serious message to clinicians, using a well known Christmas story with an important lesson to learn, to raise awareness of surgery benefits for patients with normocalcemic primary hyperparathyroidism, a very common endocrine disease which is sadly still under recognised and under treated in the UK. The main character in A Normal Christmas, is a very kind parathyroid surgeon about to experience a very different Christmas Eve after a very different 2020.


There are of course, three Ghosts of Christmas Past, Present and Future, very unlike those in other adaptations of A Christmas Carol, as well as a lovely dog named Bella (RIP my darling girl). A fictional story based very loosely on true stories. I've included medical studies in Chapter Six to show how normocalcemic PHPT isn't fictional at all, but has been written about since 1969.

If your clinician doesn't believe in Normocalcemic Primary Hyperparathyroidism, maybe buy them a copy of this book for Christmas.

 

'A Normal Christmas' has a happy ending. That's all hyperparathyroid patients are looking for, our happy ending. 
 

True case stories are included at the end of the book. Available from Amazon on paperback or Kindle (£5.99/£3.99) 
 

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https://www.amazon.co.uk/Normal-Christmas-hyperPARAthyroid-adaptation-Carol/dp/B0CNLRGXQZ?fbclid=IwY2xjawIBBANleHRuA2FlbQIxMQABHQ8UY1BNuHG28nPasS09NRkgX82s9UkZObaBS2bTV3OlRPQ_JkoQbBjN8g_aem_4qgEWPc0QZanLjTLsl2Cxg

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It's Not All About the Levels - Normocalcaemic Primary HyperPARAthyroidism

The astonishing medical mystery surrounding Normocalcaemic Primary Hyperparathyroidism (NCPHPT) is that many clinicians claim it is controversial, or it doesn’t exist and/or doesn’t need surgery (parathyroidectomy -the only cure) which is offered to hypercalcaemic PHPT patients. The reason they cite is 'Normocalcaemic PHPT can’t cause symptoms.’ which is nonsense (known as Medical Gaslighting).  NCPHPT patients are often refused PTH blood tests, scans and referrals to surgeons, by doctors, based on calcium levels alone. Those doctors are mistaken. Whether basing their beliefs on NICE guidelines (NG132) published 23 May 2019, or their own personal misguided understanding of NCPHPT, most doctors are relaying misinformation to patients, putting them at risk of serious harm, including cardiac events including sudden cardiac death, (linked to elevated PTH). If patients can learn about Primary Hyperparathyroidism, why can’t clinicians? I've included 60 case stories including my own and many reasons for serum calcium levels being reduced, which does not exclude Primary Hyperparathyroidism. Reasons which have escaped clinicians until now. I hope if they read this book, they will say to themselves, oh crikey, how did we not know that?...The time to change is NOW.

 

It's Not All About the Levels: Normocalcaemic Primary HyperPARAthyroidism (NCPHPT): Amazon.co.uk: Powell, Sallie: 9798357345424: Books

Available only on paperback currently at Amazon, but hoping to be available on Kindle by in 2025. (delayed by an unfortunate diagnosis of BC - SJP)

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One Hundred Letters

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Over one hundred letters were sent by our group members on 15th March 2021, to Sir Simon Stevens, CEO of NHS England. The heartfelt letters described years of misdiagnosis, the pointless and cruel 'Watch and Wait' regime upheld by many endocrinologists, and the battle many of us face to be heard by doctors who seem determined to find any other reason for our symptoms, rather than primary hyperparathyroidism. The only reason we can see for this barbaric practice, is ignorance, but how can so many clinicians still be completely ignorant about this disease, when patients can learn the complexities of PHPT (because they are left with no choice, in order to educate their doctors). 

 

We wrote asking them to take our health seriously and to help us to get a timely diagnosis of hyperparathyroidism and surgery.  We asked them to instigate a review of the disappointing NICE guidelines NG132. We also sent letters to Professor Amanda Howe, at RCGP, and I sent copies to the CEO s of Wales and Scotland, and the Minsters for Health in Ireland and Northern Ireland.  Robin Swann sent a very gracious response. Wales sent a very quick response saying there isn't a problem with diagnosis and how easy it is... Which is the opposite of feedback from members in Wales.

NHS England and RCGP responses, one from a representative at RCGP, and two from Jan, a case officer for NHS England (one to London and one to Australia) were dismissive, disinterested and frankly an insult, considering the nature of the letters, and the effort put into writing them (in vain) hoping someone at the top of the NHS might give a damn about the poor treatment and neglect of patients.  I felt the letters deserved to be read, so I published them. One Hundred Letters is available on kindle or paperback at Amazon: 

One Hundred Letters by Sallie Powell and members of Hyperparathyroid UK Action4Change, is available on kindle or paperback from Amazon. Follow the link below or scan the code. https://www.amazon.co.uk/One-Hundred-Letters-Hyperparathyroidism-professionals/dp/B094T5SJ6S/ref=tmm_pap_swatch_0?_encoding=UTF8&qid=&sr=

 

If you read these letters, a review would be very much appreciated.  Thank you.

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